
Annotated Bibliography
- Annotated Bibliography - Developed by Mandy Meloy, SE/A Community Outreach Coordinator, Terri Ottosen, SE/A Consumer Health Outreach Coordinator and Beth Wescott, SE/A Network Access Coordinator. More detailed descriptions of many of the items included in this toolkit can be found in the annotated bibliography.
A PDF version is also available at http://nnlm.gov/sea/outreach/healthlitkit/bibliography.pdf
Booklets and Brochures
- American Medical Association. Health Literacy
and patient safety: Help patients understand. 2nd edition.
May 2007. http://www.ama-assn.org/ama1/pub/upload/mm/367/healthlitclinicians.pdf

This booklet “reviews the problem of health literacy, its consequences for the health care system, and the likelihood that a clinician’s practice includes patients with limited literacy” .
- Berkman ND, DeWalt DA, Pignone MP, Sheridan SL, Lohr KN, Lux
L, Sutton SF, Swinson T, Bonito AJ. Literacy
and Health Outcomes. Evidence Report/Technology Assessment No.
87. Rockville, MD: Agency
for Healthcare Research and Quality. January 2004. http://www.ahrq.gov/downloads/pub/evidence/pdf/literacy/literacy.pdf

This report on literacy and health outcomes was requested by the American Medical Association and funded by the AHRQ.
- Center for Health Care Strategies, Inc. Health
Literacy Fact Sheets, 1-9. http://www.chcs.org/usr_doc/Health_Literacy_Fact_Sheets.pdf

This series of nine fact sheets was created for those who are designing patient education materials for consumers with low health literacy skills.
- Crea, Kathleen. Health Literacy Sources:
A Guide for Health Professionals. Jan. 2006. http://library.uchc.edu/eduoff/healthliteracy.pdf

Kathleen Crea compiled a list of websites of health literacy resources for health professionals and patients and families.
- Federal Drug Administration (FDA): Quick Information for Your Health. http://www.fda.gov/opacom/lowlit/7lowlit.html
The FDA provides easy-to-read health brochures in English and Spanish. Brochures are available in both HTML and PDF formats and topics include keeping food safe, diabetes, losing weight safely, giving medication, etc.
- The Joint Commission. “What did the Doctor
say?:” Improving health literacy to protect patient safety. 2007. http://www.jointcommission.org/NR/rdonlyres/D5248B2E-E7E6-4121-8874-99C7B4888301/0/improving_health_literacy.pdf

This booklet is the culmination of a roundtable discussion addressing health literacy.
- MAXIMUS and CFK National Program Office. The
Health Literacy Style Manual: covering kids and families.
2005. http://coveringkidsandfamilies.org/resources/docs/stylemanual.pdf

This booklet has suggestions for developing and improving print materials related to government programs.
- Medical Library Association. Deciphering Medspeak Brochures. July 2007. http://www.mlanet.org/resources/medspeak/index.html. Brochures.
These brochures help consumers translate "medspeak," the specialized language of health professionals. Written in English and Spanish, these brochures address HIV/AIDS, stroke, eye disease, heart disease, diabetes, and breast cancer.
- National Library of Medicine. Current Bibliographies
in Medicine: Understanding Health Literacy and Its Barriers.
2003. http://www.nlm.nih.gov/pubs/cbm/healthliteracybarriers.pdf

This bibliography in the Current Bibliographies in Medicine (CBM) series covers information on health literacy primarily from online databases and the Internet.
- U.S. Department of Health and Human Services Office of Disease
Prevention and Health Promotion. Quick Guide
to Health Literacy.
http://www.health.gov/communication/literacy/quickguide/Quickguide.pdf

This guide contains a basic overview of key health literacy concepts and techniques for improving health literacy through communication, navigation, knowledge-building, and advocacy.
Presentations
- National Institute of Literacy. National Assessment of Adult Literacy. http://www.nifl.gov/nifl/NAAL2003.html
Webcasts are available on such topics as addressing low literacy and defining the goals and research behind the National Assessment of Adult Literacy.
- Stableford, Sue. Write It Easy to Read: Vibrant Plain Language for Clear Health Communication. Biddleford, Maine: AHEC Health Literacy Center, 2004. Presentation. http://www.clearlanguagegroup.com
Stableford focuses on the need for “plain language” and defines “limited health literacy” and “easy-to-read.”
- Wescott, Beth. Easy-to-Read Health and Wellness
Material for Consumers: recognizing it, finding it, writing it,
rewriting it. National Networks of Libraries
of Medicine. May 2007. http://nnlm.gov/sea/training/easytoread.html/mla2007presentation.ppt

Presented at the Medical Library Association meeting in May of 2007, this powerpoint presentation aids the user to critique, rewrite and create materials that get health and wellness information across quickly and clearly.
Ms. Wescott also teaches a class called Easy-to-Read Health and Wellness Material for Consumers: recognizing it, finding it, writing it, rewriting it. To schedule a class, please contact Beth Wescott.
- World Education. Health Literacy: New Field, New Opportunities. http://www.healthliteracy.worlded.org/docs/tutorial/SWF/flashcheck/main.htm
This online tutorial is designed for health and literacy educators interested in getting more involved in health literacy work.
Tutorials
Virtual Toolkits
- American Medical Association. Health Literacy Kit. Chicago: AMA Foundation, 2007. Manual, DVD, and VHS. http://www.ama-assn.org/ama/pub/category/9913.html
Using a multimedia approach focused on health professionals, the American Medical Association (AMA) uses real-life scenarios and statistics to address the problems of health literacy.
- Children’s Hospital & Regional Medical Center. Patient & Family
Education Materials Development Kit. July 2005. http://www.cshcn.org/forms/matdevkit05.pdf

This kit provides steps to writing a handout that is easy to read and understand.
- Medical Library Association. Health Information Literacy. Nov. 2006. http://www.mlanet.org/resources/healthlit/index.html. Website.
This site offers a plethora of resources for health professionals and consumers and includes links and information to fact sheets, brochures, toolkits, and project ideas for health literacy.
- Public Health Information Partners. Health Literacy: Tools for Improving Health Communications. 2007. http://library.nymc.edu/PHInformatics/hltoolkit.cfm
This toolkit is from a conference held May 30, 2007 at New York Medical College, Valhalla, NY. The conference goal was to provide health professionals and hospital staff with an educational opportunity to develop awareness of health literacy issues and improve communication skills with individuals throughout the Hudson Valley Region of New York.
- Singleton, Kate. Virginia Adult Education Health Literacy Toolkit. 2003. http://www.aelweb.vcu.edu/publications/healthlit/index.shtml
Answering questions such as what is health literacy and what resources are available, this Toolkit is a resource to help adult education instructors and administrators better understand the problem of health literacy as it affects their learners.
Web Resources
- Agency for Health Care Research and Quality: Health Literacy and Cultural Competency. http://www.ahrq.gov/browse/hlitix.htm
Online resources and pathfinders relating to health literacy, consumer decision aids, clinical information, and improving healthcare delivery.
- Ask Me 3. http://www.npsf.org/askme3/
This website helps consumers and providers learn how to communicate effectively with each other, address the problem of health literacy, and provide a solution to end health literacy.
- Harvard School of Public Health. Health Literacy Studies. June 2007. http://www.hsph.harvard.edu/healthliteracy/index.html
Resources include a slide presentation, video, a chart about health literacy, literature, and how to create and access print materials.
- Health & Literacy Special Collection. http://healthliteracy.worlded.org/
Information includes health lessons, easy-to-read material, multilingual health information, and health literacy research.
- Health Literacy Consulting. http://www.healthliteracy.com/default.asp
Helen Osborne, the developer of this website, directs health care professionals and consumers to a variety of health literacy resources.
- Health Literacy – National Network of Libraries of Medicine. http://nnlm.gov/outreach/consumer/hlthlit.html
Funded by the National Library of Medicine, this website defines health literacy and lists health literacy organizations and websites.
- MedlinePlus Easy-to-Read. http://www.nlm.nih.gov/medlineplus/easytoread/easytoread_a.html
Developed by the National Institutes of Health and National Library of Medicine, MedlinePlus helps consumers find up-to-date, quality information about health topics, herbs and drugs.
- MedlinePlus
Topic Page: Health Literacy. http://www.nlm.nih.gov/medlineplus/healthliteracy.html
- The Newest Vital Sign: A Health Literacy Assessment Tool
http://www.clearhealthcommunication.com/physicians-providers/newest-vital-sign.html
The Newest Vital Sign is a bilingual (English and Spanish) screening tool that identifies patients at risk for low health literacy.
- NIH Senior Health
http://nihseniorhealth.gov/
This website from the National Institute on Aging and National Library of Medicine has easy-to-read health information and videos for senior citizens.
- Popular topics: Improving Health Literacy
http://www.plainlanguage.gov/populartopics/health_literacy/index.cfm
PLAIN, the Plain Language Action and Information Network, sponsors this site and its goal is to promote the use of “plain language” for all government communications.
Useful Examples
- Baby and Me. READ Saskatoon. 2nd edition.
http://www.nald.ca/readsask/pubs/babyme/babyme.pdf
Developed by READ Saskatoon, this easy-to-read book divides pregnancy into 3 trimesters. Each section explains what to expect for the mother and her growing baby.
- Diabetes Easy-to-Read. National Diabetes Information Clearinghouse.
http://diabetes.niddk.nih.gov/dm/ez.asp
Topics include information about diabetes and how it relates to medication, physical activity, and nutrition.
- Hands on Health South Carolina
http://www.handsonhealth-sc.org/
The purpose of Hands on Health South Carolina is to give South Carolinians a place to go to learn about health and wellness in an easy-to-read format. Health problems addressed include diabetes, heart disease, cancer, asthma, stroke, and suicide.
- My Guide to Sugar Diabetes
http://reach.musc.edu/materials/booklet.pdf
Developed by South Carolina Diabetes Prevention and Control Program Diabetes Initiative of South Carolina Enterprise/MUSC Neighborhood Health Program, this guide has easy-to-read information about Sugar Diabetes.
- National Institutes on Aging. Understanding
Alzheimer’s Disease.
2006. http://www.nia.nih.gov/NR/rdonlyres/F463CE6C-B0A7-47F4-882A-8EA143020193/0/understandingalzheimers.pdf

Developed by Alzheimer’s Disease Education and Referral Center (ADEAR), this booklet offers easy-to-read information about Alzheimer’s Disease.
Health Literacy Assessment Tests
- Rapid Estimate of Adult Literacy in Medicine (REALM). Columbia University School of Nursing. http://www.nursing.columbia.edu/informatics/HealthLitRes/assessTool.html
The REALM is a medical-word recognition and pronunciation test comprising 66 medical terms.
- Test of Functional Health Literacy in Adults (TOFHLA). Columbia University School of Nursing. http://www.nursing.columbia.edu/informatics/HealthLitRes/assessTool.html
The TOFHLA measures the functional literacy level of patients, using real-to-life health care materials.
- Wide Range Achievement Test-Revised (WRAT-R). United States Department of Veterans Affairs. http://www.hsrd.research.va.gov/for_researchers/measurement/instrument/overviews/is_literacy.cfm
The WRAT-R is an individual achievement test that assesses skills in reading, spelling, and arithmetic.
Promotional Materials
- MedlinePlus Capability Cards and Pens
- The Information RX Program
The National Library of Medicine provides physicians, librarians and other health care professionals with an easy way to refer their patients to an authoritative, user-friendly and commercial-free Internet site for health information. - My Blood Pressure Wallet Card

- Quick
Reference Heart Attack Information Card

Thank you to those dedicated to educating and advocating for health literacy and for providing and sharing your resources, reading lists, classes and websites.
This toolkit was developed by SE/A Coordinators, Mandy Meloy,Terri Ottosen and Beth Wescott.


